Author Topic: Early Diagnosis  (Read 1781 times)

rahab

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Early Diagnosis
« on: November 21, 2005, 06:25:37 PM »
Agreeing with what Paul said a few weeks ago. Psychosis hits hard and it can hit very early.

My psychosis was not well diagnosed, coming after a long labour and a forceps delivery of a very large baby that also left me with "a well scarred perineum" - a third degree tear on top of the forceps damage :( but it was obvious that something was badly wrong and this was picked up at five days - extreme agitation, utter and near total sleeplessness, and they tried various drugs in increasing doses - they started with little pink ones and they tried yellow ones then blue ones before transferring us both to the mum-and-baby psychiatirc unit at eight days. The horse tablets dose that should have had me asleep for 48 hours put me out for 2 hours, and that was with horrendous nightmares. I think that was when they knew something odd was going on.

They took away the clock in my room because they thought i was trying to keep myself awake working to a schedule: that was when i got really disoriented and worried. That was so unnecessary. Then they took away my baby-nail-scissors (OK how sharp are they.) I was wierd but no i wasn't suicidical. That did upset me.

One problem for the medics is that the condition is sufficiently rare that even the gynae registrar hadn't met it before, so he couldn't really guide the SHO, and it was a bank holiday weekend so there was nobody more senior about. Even the registrar was a locum. I will never forget that the SHO did sit up all night with me in my room; She really did her best.

They were trying to let me keep on breastfeeding but the exhaustion put paid to that in the end anyway. I never got home in between. I was 24hours away from compulsory ECT but thankfully the drugs worked on time.

I was hallucinating by this stage and doing all sorts of bizarre things, but who knows whether the cocktail of drugs made it worse? Certainly by the time i had to make up babyfeed bottles, i couldn't read the small print because of visual complications which it turned out were side effects of the antipsychotic medicines. If only somebody had told me that! If only the junior doctor on call had read the book and given me an antidote to these symptoms in time! The psychiatric consultant who interviewed us when i was transferred gave me an intravenous shot of the antidote before she even talked to me and within ten minutes i could walk straight and get my neck out of its crick position, though it was several days before my eyes got sorted.

The good news is that it does get better; i was back at work at four months and off all medication. At the time it was desparately frightening though and i pray for all of you here and your families. My faith has been a tremendous support through it all and during my recovery, which is just as well because my husband left me within three years. Apparently 70% of marriages cannot cope with the stress this does to you but don't despair. The hardest to cope with in hindsight must have been my loss of confidence in myself. He also lost confidence in me that really destroyed the relationship. You might be not be a believer but when you have crossed the line between what your senses show you and what your brain knows must be there, it all makes nmore sense. For instance hot water coming out of the cold tap, or voices coming from a room you can see to be empty. It's scary. It alters you whole world view of what really is, what you can prove, and what you just think you saw. That's one thing i hate now at work if i have to fill in accident forms etc.

So many things could have been done better, from medication to communication between professionals, from poor discharge planning to better follow-up and support. My GP didn't even know i had been transferred, nobody told him. I wish this forum had been around then and it seems the drugs have come a long way too.

Offline dave

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Early Diagnosis
« Reply #1 on: November 23, 2005, 01:58:14 AM »
Many thanks for your post Rahab. I trust you're much better now!

If you don't mind me asking, how long ago was this? Whilst I hope things have improved since you went through this ordeal, I feel even now that too few medical professionals have any experience with the condition.

My wife, for example, is visited by a CPN (community psychiatric nurse) fairly regularly, and she's the first case she's ever dealt with in God knows how many years. I think there's much room for improvement in the awareness of the condition amongst doctors, nurses, midwives and health visitors.

Offline robert

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Early Diagnosis
« Reply #2 on: January 08, 2006, 02:44:41 AM »
i started to write my story at xmas and suddenly realised it was too big to write in a few hours etc only to say i suffered mental illness at the birth of my son and from reading your stories suffered pretty much as you did To go from believing your self a bad mother not coping not sleeping and finally going mad is quite a story and now three and three quater years later to be better is wonderful. I must admit its been a long road back but you do apreciate your normalness as you get back there.

Offline Chris

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Early Diagnosis
« Reply #3 on: January 08, 2006, 02:55:10 AM »
Hi, I am new here i would like to add to this by saying my baby was three weeks old before my pp was diagnosed five years ago

I guess it started when i had my daughter and had a heavy bleed after the delivery of the cord(gory i know sorry) i couldn't settle in hospital so i signed myself out i dont remember much but i do know that the fireworks on new years sounded like bombs going off in my head my head ached that much
At first they thought it was normal baby blues but it must have been when i asked the health visitor if it was "normal to feel evil" that things started to go funny they put me on anti depressants and at first they didnt work

Then one Friday i forgot to pick up my son who at the time was six from school that night it all went down hill the washing machine was really noisy the neighbours were having some kind of party and all of a sudden i jumped out of my bed and went down stairs and started to go mental, mum whisked me off to the local hospital in an ambulance cant remember much of it from there as it all a blur i remember thinking up is good down is bad when being moved to different parts of the hospital then i was moved to a psychiatric ward in another hospital i cant remember a couple of weeks of that but they put me on anti depressants and anti psychotic drugs which worked a great deal and i had my third child 15 months after having my daughter

when i looked a few months to a year later at pictures of my daughter as a new born i didnt recognise her but i still love her to bits now i was told after wards that i had had a near nervous breakdown and was nearly sectioned because of pueperal psychosis in total i was seperated from my family for three weeks for a fair bit of it the y didn't let me see my daughter for some reason, i have to say though i did do some bizarre things at the time

Here i am five years later and perfectly fine i wouldn't swap my children for anything in the world i love them all.

Rahab i am truly sorry to hear about your seperation from your partner but the whole postnatal psychosis ordeal brought me and my partner closer together and we are as close now as we ever were

I have wrote a poem about my ordeal but would rather not post it anywhere unless absolutely necessary

Offline rahab

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« Reply #4 on: April 27, 2007, 01:36:15 AM »
Thanks for your replies. This was nearly 16 years ago, and it has been a long road home, mainly to find that home is not where or what i had thought.
Your stories have also helped me, i am inspired by how many of you are up to try again despite a bad experience. Good luck!