hi jules i can compleatly relate to what you are saying as i too have suffered this horried illness and i dont think anyone can relate to what i or you and other suffers have been through.
i called my husband not fit to burn but fortunatly he was given the best advice avalible so he did understand thankfully but please dont blame your self your partner obviously doesnt understand compleately what happened to you all i can surgest to you that maybe your cpn nurse can put you two in contact with someone who can explain the illness to him properly i hope he can understand eventually what a dreadful ordeal you have actually been through,sometimes we suffer this illness when we ourselves have been through a very difficult up bringing and it is worth trying to unravel the pain we suffered as a little girl as the illness for me was like all my worst fears,
take care of your self and please stay in contact i do feel as you talk about it more you do eventually feel a bit better
kind regards emma

a biblical quote that helped me recover well it not all from the bible but from a book called my dear son by colin urquhart its quite long but i think its very good
heading is called your wilderness
"we do not have a high priest who is unable to sympathise with our weaknesses,but we have one who has been tempted in every way,yet was without sin"(heb.4:15)
jesus had 2 experience every temptation possible.He identified completely with u so u can identifiy completely with him.Just as my spirit led jesus deliberately in2 the wilderness,so i lead u in2 the wilderness,not becoz i am angery with u but 2 strenghthen ur faith. Such times bring refining in2 ur life n teach u 2 trust me regardless of ur circumstances.And that is 1 of the most important lessons for u 2 learn,beloved.
The wilderness is a desolate place.It seem there is nothing 2 sustain or encourage u.U feel isolated n alone.There is nobody 2 turn 2 no one who can understand ur predicament-except me! This is why i allow such times.Each of my children has his or her times in the wilderness.Either they emarge with a stronger trust in me,or they fall away becoz they follow me 4 the wrong reasons.The enemy is very active in his attempts 2 lure them away from dependence on me.During these times u see ur own heart more clearly.u have 2 ask urself:do u really trust me,or do u try 2 struggle through in ur own strength?
as with jesus,i have supplied all the resources u need 2 withstand everything n anything the enemy throws against u.Like jesus,u can come through every time of testing victoriously.Like jesus, i want u 2 emerge from ur time in the wilderness full of joy in the holy spirit.
Do u understand? I have given u my spirit 2 lead u through every time of difficulty in triumphant joy.Even durnig wilderness experiences,i promise both my presensce n provision.I hear ur cry for help n answer u.IT IS NEVER MY PURPOSE TO LEAVE YOU IN THE WILDERNESS.
So dont resent these times.They are times of refining n opportunities 4 spiritual growth,even when it seems i am far from you.When u have trusted me in the wilderness,u can trust me anywhere.
surgested readings from the bible are (heb 4:14-16) (ps.66:10) (rom 8:6) (ps 139:7-10) (jas 1:2-4)